Hey, look ma, no wisdom teeth!

June 28th, 2009 by Elizabeth Kaylene

I had my wisdom teeth extracted last Friday. I assumed I’d be back to normal within two or three days, but I ended up missing a week of work and I took a trip to the ER for dehydration. I also had to keep switching prescriptions and ended up ditching all three for Advil, because I kept reacting so strongly to all of the drugs. My stomach has also shrunk to about half the size it was before this whole thing. Yeah, this last week rocked.

But I’m alive and well, no matter how paranoid I am of getting dehydrated again (I have been constantly sipping on Gatorade since I got home from the ER). I even got out of the house yesterday and went to the park for a quick hike and then a game of Scrabble. Probably the best part of this whole thing was that while I was all drugged up on this and that for the holes in my mouth, I barely felt any of my regular pain. It came roaring back for a little while yesterday, but it was a lot more manageable after feeling like an Eskimo was drilling in my mouth for the last week. I’ve got perspective now, people.

The other good news is that I seem to have found a doctor who might actually help me. Well, she’s a PA (physician assistant) actually, but she totally rocks. I think her name is Pam; don’t quote me on that. Anyway, before my wisdom tooth surgery I went to the office that my aunt’s friend recommended. Because of some scheduling issues, I couldn’t see my aunt’s friend’s doctor (who is also the practice’s main doctor), and I couldn’t see the other doctor because of more scheduling issues (AKA, I stubbornly went on my own, couldn’t find the office, had a breakdown, and canceled and rescheduled for the next day).

Anyway.

Long story short, Pam actually listened to what I was saying and she actually looked at my list of symptoms with an open mind. She said she would review all of my medical records and tests before ordering any more tests or doing anything else, and that she would get back to me. She got back to me while I was all drugged up, of course, so I may have imagined all of this, but she called to say that my B12 levels were a little low and asked if I’d like to try B12 injections. My neurologist, who had ordered that particular set of blood work, hadn’t seemed too concerned about the B12. I told her I’d give it a shot, because at this point? I’ll try anything.

I have an appointment about two weeks from now to talk more about the injection and to do it if I decide to. I honestly don’t really think that it could be something so simple. I really feel like there’s more at work here, but I can’t really knock it if I don’t try it. I feel like I have to be able to say, “well, I did try it, and it didn’t work, so there has to be something else going on,” because when it comes down to it, I really don’t know and I might never know if I don’t try it. I’m probably not making sense. See what this has done to me? I can’t go to doctors’ offices alone and I can’t form coherent sentences. Or maybe I’m just having withdrawals from a lack of coffee this last week.


On a totally different note, I’m trying to reorganize and reformat things around here. I’ve come to realize that Scars Can Speak has become something totally separate from Letters of Love, and I’m thinking about giving it its own website (ie, scarscanspeak.org or something like that). What do you think? Leave a comment and give me your thoughts and ideas about this!

16 alternatives to self-injury

June 9th, 2009 by Elizabeth Kaylene

I’ve been talking to a lot of people who have been having a hard time with self-injury lately, myself included. (Did you know that lip biting is a form of self-injury? I didn’t, and I’ve been doing it for years! I do it from time to time, and lately I’ve been doing it a lot.) I thought it might be helpful if I posted some of the alternative coping methods I’ve used throughout the years.

  1. Chew gum. I’ve been having a hard time not biting the inside of my cheeks lately, unless I’m chewing gum.
  2. Cut something inanimate, such as a notebook. I once cut up the cover of a leather journal. I felt bad about ruining the journal later on, but was glad that I didn’t have to deal with band-aids and ointment.
  3. Paint. I’ve been wanting to try this. I’ve heard that painting or drawing with red really helps.
  4. Cut a piece of fruit. This has been pretty effective for me, especially oranges because they have thicker skin.
  5. Smoke a cigarette. I know that smoking is bad, but it worked pretty well for me for the longest time. The slow inhaling and exhaling really helps calm me down. I’ve been trying to use deep breathing instead since I quit in January, but I’ve been cheating quite a bit. Still, it’s better than cutting, at least in my opinion.
  6. Sing or listen to music. Since quitting smoking, I’ve found that turning on my favorite record and singing along really, REALLY helps calm me down. Sometimes it only takes one song, sometimes it takes a whole album. I’ve also found that it really helps me sleep. Having an mp3 player in my BlackBerry really helps.
  7. Keep your hands busy. Starting a new web project or craft project is one of my favorite coping methods. Not only does it keep me from cutting, but it keeps my mind off of things AND it makes me productive. Most of the cards that I make for people are made when I’m really, really stressed out.
  8. Rip paper. Take a piece of paper, napkin, or tissue and rip strips from it. I do it a lot, sometimes without realizing it.
  9. Scream. Scream, yell, grunt, do whatever you have to do! Take what you’re feeling inside and vocalize it. You might feel a little crazy doing it, but it does make me feel better.
  10. Write. I used to carry a journal with me wherever I went, and every time I felt like cutting (or even when I did cut), I would write in my journal. I still do sometimes, but I rarely take my journal out with me anymore. I do a lot of blogging now instead, which is probably my favorite option for me right now. In the past I’ve written quick poems or stories to entertain myself and get me thinking about something other than hurting myself.
  11. Cuddle. I cuddle with my cat, stuffed animals, boyfriend, little cousin, sister… Anything in reach!
  12. Read. Escaping into another world (book), someone else’s life (blog), or something that interests me (article) can help distract me and make life seem a little more bearable at the moment.
  13. Be silly. As strange as it sounds, there have been times when I felt like absolute hell and just decided to make silly noises or faces at myself in the bathroom mirror. Soon I was laughing and felt a lot better.
  14. Draw on yourself. I keep Crayola washable markers around so that I can draw or write on my arms if I need to. I’ve heard of people using a red marker to draw lines on themselves instead of cutting.
  15. Write a letter. You can write a letter to a real person or someone imaginary. Sometimes responding to a letter or email and being there for someone in turn makes me feel better.
  16. Talk. You don’t even have to tell the person you’re talking to what you want to do. Having a conversation with someone sometimes distracts me enough so that the urge goes away. If I feel comfortable enough telling them what I want to do, we might talk about why I’m feeling bad. There have also been times when I just talked to myself while driving or in the bathroom. I’ll say, “You’re okay,” and “I love you.”

I also spent some time talking to some of our friends on Twitter and they shared their own favorite coping methods with me:

Coping methods from some of our friends on Twitter

Coping methods from some of our friends on Twitter

Leave a comment with your own coping methods or to tell me what you thought of this list!

You know that I could use somebody

May 31st, 2009 by Elizabeth Kaylene

Tonight I found out that my state may be creating an awareness day for self-injury. Many, many people cut or use other forms of SI — some that I wasn’t even aware of (Princess Diana? Really?). I didn’t even know that lip biting is considered self-injury. It’s a nervous habit of mine, something I’ll do without my even knowing until I taste blood in my mouth. As I write this I’m trying not to bite at a spot on the inside of my lip that I bit open earlier today. I never really thought about it before, but I’ve always done it, usually when I’m stressed out or anxious. It makes me feel better. I’ve never thought about it, but I guess it actually is self-injury.

And right now? Boy am I stressed out. I’m scrambling to get ready to start on my Bachelor degrees in the fall (I’m double majoring in English and Elementary Education), and dealing with some drama that started all because I stopped talking to a friend. (This drama includes nasty emails and comments on my personal blog. Ah, the joys of personal blogging!) I’m also still feeling the residue of last week’s fiasco that came from my mentioning to my doctor that I wanted to kill myself.

But I’m “coping”. I’m “hanging in there”. Which is why I cried all over Mike last night after we went to see Up. I thought I was doing well with not smoking, but then I had a cigarette last night on the ride over to the movie theater. I thought I was doing well with not cutting — the thought hasn’t even crossed my mind — but I guess biting on the inside of my lips and cheeks until I bleed is the same thing.

And all the while, echoing in my head are the words of a stranger: Selfish. Bad friend. Mean. Not a nice person.

Half of me believes these things, even though I know it isn’t true. Even though I know those words were meant to hurt me. Even though I know that the person who wrote them is probably the person I stopped being friends with, hiding behind a false name. Those words were much too harsh to come from a stranger. I know all of these things, but it still hurts. I read Larissa’s countless blog posts about her ex-friends, and I know her pain because I feel the same pain. How can you be someone’s friend, love them, when they don’t give you the same love and care that you give them? How can you go on when you still miss this person, still love them, even after all that has gone down? How can you recover from words so hurtful, when you know they’re only words and not the truth? It still hurts, because it comes from someone you love.

So I sit here, trying not to chew on my lip anymore or to go back to my old ways. I sit here, making goals and to-do lists, writing blog posts and reading others’ blogs. Anything to distract me. Anything to keep me from thinking of what I know will haunt me once I lay my head down. The amitriptyline? Not helping. I have to wonder why my rheumatologist thought that 10mg would help me sleep, never mind relieve my pain.

There’s so much pain and frustration inside and out — none of which I can change.

Is anyone else having a hard time not self-harming? Please comment or email me. I could use some support.

Kill the Pain (Part V: Suicide Watch)

May 30th, 2009 by Elizabeth Kaylene

Naturally, when I got in to see Dr. Manzo — or Dr. M — my hand was no longer swollen. At least, when he looked at it.

“I mean, you know yourself better, you deal with it every day, but I don’t see that it’s much different from your other hand,” he said, giving my hands another go.

“But,” I said, then gave up. Clearly someone was messing with me.

One of the receptionists poked her head in and told him there was a call. He excused himself, and I stared at my hand, feeling foolish. Stupid, stupid hand, I thought at it. Couldn’t you have waited one more freaking day? I thought that it had been swollen when I’d arrived, but I couldn’t see anything. Was I crazy? No. No freaking way. My mom had seen it and so had my coworker. There was no way I could be making it all up.

Dr. Manzo came back in. He looked a little more, and we talked a little more, and then he had to go take another phone call.

Clearly, I thought, looking at all of his diplomas and cerificates, I should get a doctorate and diagnose myself. It might be cheaper in the long run, and I would give myself all of the TLC I deserved.

Dr. M came back in. (Do you see the pattern here? Good. Remember it.) We discussed my Tramadol and how it — in plain English — knocks me off my ass, and he wrote me another prescription for some lesser pain reliever or other that I would take twice a day, that I could drive on, and all of that nonsense.

“I feel like no one is taking me seriously,” I said, mostly to myself.

“I want you to know I am taking you seriously, but I just don’t know what it is. I don’t think there’s anything anatomically wrong with you. I wish I had the answers. Really, I do. But I don’t.”

“I’m so tired of seeing a million different doctors. It’s so frustrating, so depressing sometimes.”

He asked me if I was seeing a therapist, if it was helping. He told me his wife had gone through a hard time and her therapist had really helped, blah blah blah.

I could tell that he was just going to send me on my way, no referrals, just another prescription to add to my pile. Suddenly I just lost it. I told him how all I think about is suicide, how I just can’t stand the pain or seeing a kajillion doctors who all tell me the same thing — nothing. I looked and sounded like a wreck. In retrospect, I now know not to ever mention the S word in front of a doctor. He called my physician, Dr. DeLucia, but Dr. D wasn’t in. Dr. M then called the local — not Catholic — hospital’s ER crisis center (read: crazy people center) and arranged for me to meet with a counselor there.

Once again, I was being sent away. I didn’t need counseling, I explained. What I needed were answers. He repeated his mantra, that he wished he had the answers but he didn’t, that he thought the counselor could really help. I agreed to go, and left clutching the stupid prescription and my glaring yellow notebook that I take with me to every appointment, that I write every change in and every time the pain is really bad.

I sat in the car, calmed down, and turned the key. Uh-oh. My gas gauge was almost on E. I decided to just go back to my aunt’s house, since I only had enough gas to get to work in the morning and wouldn’t get paid until the next morning (I have direct deposit).

When I got back to the house, I decided to call Dr. M just to be courteous so he didn’t call the hospital to find that I wasn’t there. I thought I’d leave a quick message with the receptionist, but quickly found out it wasn’t going to be that simple.

“Hi, I just saw Dr. Manzo a few minutes ago, and he wanted me to go see a counselor in the crisis center. I just wanted to let him know that I can’t make it and went home instead.”

“Okay, hold on one moment?” She left me on hold.

I sat chainsmoking, mentally kicking myself for buying that pack of cigarettes the other day.

She came back on the line. “Why exactly can’t you go?”

“I’m out of gas,” I said, knowing full well where this all was going. “And I’m out of money. I won’t get paid until tomorrow morning, and I only have enough gas to get to a gas station. So I can’t go. I appreciate his help, but I’m not going to go.” I thought I deserved points for being firm; I felt proud of myself for being firm the past few days.

“Hold again, please.”

Fuck, I thought, and lit another cigarette. My allergies were killing me. I thought I should go back inside.

Dr. Manzo came on the phone. “Hi, why can’t you go?”

I explained again, really kicking myself for opening my big fat mouth. “I really appreciate your help, but I promise I’m fine.”

“I really think you should do,” he said. “Can you leave your car in our parking lot and maybe we could give you a ride?”

“I’m already home,” I said. And then I really dug myself a grave: “I’m house sitting, see.”

“Oh. So you’re alone. Who is your therapist?”

I told him: my third mistake.

“Would you mind if I called her?”

“Uh, sure.”

“And where is your mom? Can she maybe come get you and bring you in?”

“At… work? Look, I’m not going to the hospital.”

Dr. Manzo promised to call my therapist (who never called me, by the way) and my mom, and finally let me off the phone. I called my mom and left her a voicemail to warn her, but it didn’t matter. Dr. M still called her and scared the hell out of her. I ended up on suicide watch for the rest of the day. My mom tried to make me go to the hospital and be admitted, but ended up taking me to Frankie’s instead for a hot dog.

I finally “cashed in” my prescription for amitriptyline. I know that it takes a while to take effect, and that it will only help me sleep and possibly relieve the pain, if at all. The dosage is only 10mg, and according to my aunt it would take 300mg to use it effectively as an antidepressant.

I don’t care.

I’m at the point where I don’t want to see any other doctors for a while. Every time I see one and they send me off with a pat on the head, I feel worse. I don’t feel that any of them are taking me seriously (unless I say “suicide” or “depression”). I don’t feel that any of them really think there is any validity to my pain. The fact that Dr. Lichter told Dr. Manzo I am “feeling much better” is proof enough for me.

As for my therapist? I hope she loses her license. Not only did she string me along to make more money, but she also failed to call and check up on me after my doctor called her to tell her I was having suicidal thoughts. She fails completely.

My plan right now is to try and take it easy. I’ve made plans to go back to school (I just have to meet with my advisor, register for classes, and buy some books), and I have a surgery coming up to extract all four of my wisdom teeth. As painful as it sounds, it’s going to be one less thing that hurts right now (once the healing process is over, of course).

I have one more doctor I want to try, but I need a break first.

Suicidal thoughts are like an addiction for me: once they creep in, they become my knee-jerk reaction to everything negative. Had a bad day? I’m going to overdose. In pain? Sit outside in the cold, of course! Minutes later, when the urge is gone, I feel silly and overdramatic. But it keeps on happening, and that’s the part that worries me — and everyone who cares about me. Right now, typing this? I don’t want to kill myself. I don’t want to die. I love myself, and I love my life. But the pain is slowly stealing my breath, smothering my spirit. I need a break, but I also need to keep fighting.

Something is wrong, very wrong, and I won’t stop until I find out what it is.

( To Be Continued… )


Read Kill the Pain (Part I), Kill the Pain (Part II: Doctor Soup), Kill the Pain (Part III: More Doctor Soup), and Kill the Pain (Part IV: Full Circle).

Kill the Pain (Part IV: Full Circle)

May 29th, 2009 by Elizabeth Kaylene

Back at square one, I started to lose hope — again. Discouraged, depressed, and sleep deprived, I continued to Google my symptoms online. Time passed. Every little thing sounded like me. I stopped Googling. I started seeing a grown up doctor, my parents’ physician, Dr. DeLucia. The nurse practitioner I saw for my first visit and physical ordered more blood work. Everything came back fine.

My aunt and grandmother suggested their neurologist, Dr. Greco. I had Dr. DeLucia give me a referral for Dr. Greco. Dr. Greco ordered more bloodwork, did another EMG. He did a pressure point test for fybromyalgia. Everything was fine, everything was normal. Dr. G referred me to a rheumatologist, even though bloodwork had ruled out rheumatoid arthritis time and time again. It was worth a shot. Dr. G also prescribed me Ultracet. I kept running out of money, and didn’t think I could afford a prescription. Luckily, my great-grandmother had stockpiles of Tramadol (same drug, minus the extra Tylenol in Ultracet). I tried it, and it worked. It didn’t make me feel crazy, but I still couldn’t function on it. It affected me the way really good marijuana used to affect me, back in my high school stoner days.

I had an appointment with Dr. Memet, my first female specialist and the rheumatologist. It should have been comforting, but it wasn’t. She ordered more bloodwork, a urinalysis, and did another pressure point test. I mentioned that the pain and lack of answers was depressing, and she prescribed me amitriptyline, suggesting that maybe all I needed was an antidepressant and a “good night of sleep.” She suggested I see a therapist or psychatrist. I added the printout to my pile of prescriptions.

Slowly, the suicidal thoughts started creeping in. I would pause in the bathroom while getting dressed, peeing, or brushing my teeth, and I would stare at the little bottle of Tramadol and Nyquil, wondering if I had the balls to do it, wondering if it would work.

After a party, happy about a good night of beer pong and many wins, I decided that I would just sit outside in the below 30° weather and let the cold and alcohol do the job for me. I didn’t want to deal with the pain anymore. Mike begged and pleaded with me, trying to lift me off of the stairs outside my house. After about twenty minutes of that, he decided I was bluffing and went home. He thought I’d get up and go inside, that it was just a drunken hysteria. I didn’t, and it wasn’t.

He called me twenty minutes later, and I was still outside. I shivered a little, but mostly felt numb. I had to pee, but didn’t care. We talked on the phone for another half hour or so, and then I changed my mind, just like that. I remember wrapping myself in several blankets and three layers of clothing and still not feeling warm enough.

The pain continued to get worse, to spread, to intensify, along with it my thoughts of ending it all. At times I felt serious, but then minutes later told myself I was being overdramatic.

The pain started manifesting in my feet and toes and, sometimes, my legs. I started to wonder how much longer I’d be able to walk.

I had two episodes of very, very instense, sharp pains in my left arm and shoulder. The episodes were a couple of months apart. I started noticing more and more often that, occasionally, my left thumb would be sore and sometimes swollen for a couple of days. Once, when I got out of the shower, my feet were very red, swollen, and achy. Minutes later, they were so normal that I wondered if I’d imagined it. I started to wonder if I was imagining it all.

I missed a follow-up appointment with Dr. Greco because of bad hemmorhoids and constipation. During it all, as I laid in bed in agony, I wondered if the symptoms were related at all. Most of the time I just felt crazy. I started seeing a therapist, who pretended to work on meditation techniques with me but kept insisting that she needed prep time and that we would do the techniques “next week.” I stopped seeing her.

Then my hand swelled up again.

Earlier in the week, my left thumb had become stiff and sore. One morning, while I ran my hands under warm water at work to soothe the pains, I noticed that the base of my thumb was swollen again. “Can you look at my hands?” I asked a coworker. She noticed right away that it was swollen. I was relieved that I wasn’t imagining it. I showed my mom and scheduled my follow-up with Dr. Greco. I wanted someone to see my hand and get it on medical file.

Dr. Greco looked at my hand the next morning. I had to leave work early to make the appointment. “That’s because of the carpal tunnel syndrome,” he said when I showed him the differences between my two hands.

“I… don’t have carpal tunnel syndrome,” I said, baffled.

He continued the examination. “Did you see the rheumatologist?”

“Yes,” I said.

“Did you tell her that you have long limbs and joints?”

“No,” I said. The last time that I had seen Dr. G, he had also kept saying that it was because I am double jointed and have long limbs, fingers, and toes. “She wasn’t very helpful, anyway.”

“Oh?” He stopped and looked at me.

“She told me to go see a therapist, and my therapist told me it’s all in my mind, too.” I flexed my hands and told him that I had really wanted someone to see my hand while it was still swollen.

“You must have hurt yourself,” he said.

“But I didn’t. This has been an ongoing problem. It’s all a part of my whole mystery problem.”

He kept insisting I’d hurt myself and ordered an xray of my hand and wrist, as well as another EMG for the next day. I decided to go get the xrays done right then, and called my boss to tell him that I wouldn’t be back that day. I tried not to think about the money I just lost and the hours I would have to make up as I crossed the bridge between the medical building and the Catholic hospital. I tried not to think about how much time was going by as I went through admissions and filled out paperwork. I tried not to think about how frustrating this whole day was becoming (I’d almost gotten into a car accident earlier, because some old man had come within inches of backing into my aunt’s car) as I waited in the radiology department. Finally, they called my name for the xrays.

The technician held a clipboard as she ran through the routine questions. “When was your last period?” She asked.

“Last month,” I said, fidgeting a little. It would all be over soon, I reminded myself.

“And this month?” She made notes on the clipboard.

“It’s a couple days late, but I recently switched to a new birth control pill, so it should be coming any day now.”

“Well,” she said. “We can’t legally do the xray unless we know for sure you’re not pregnant. Can you have your doctor order a pregnancy test?”

“No,” I said. “And I’m not pregnant.”

“We can’t do it unless we know for positive.”

“So you’re telling me that I just wasted all of this time for nothing?” I tried to keep my voice down, but my anger clearly showed. “That I just wasted a work day for nothing?”

“I can get my supervisor to come and talk to you to approve it,” she said. “But I can’t legally do it.”

“You do that, then,” I said, trying not to snap.

The technician left the xray room, and I looked down at my stupid hand. I had never heard of anything like that, and I had no idea how xraying my hand and wrist could possibly hurt my nonexistent child.

A woman poked her head in and then came in slowly, closing the door behind her. She was probably afraid of the crazy “pregnant” woman. She asked me if I was pregnant, and again I told her no, that I had recently switched birth control and had anticipated it being late or different. She insisted that I could be pregnant and that she couldn’t do the xrays, and my patience jumped off a cliff.

“Fine,” I said through clamped teeth, trying to hold back the tears. I’m one of those lucky people who cry when really mad, so I don’t look threatening or anything; I just look INSANE. “Glad that I wasted a whole goddamn work day here for nothing,” I said as I followed her back to the reception cubicle.

“Could you give Ms. Barone her xray order back?” She asked the nurse behind the window. I snatched it from her when she handed it back to me. “Come back when you know for sure,” she said.

“When I come back, it WON’T be fucking swollen anymore!” I snarled as I stalked away, tears running down my cheeks.

I probably scared every nurse, every patient as I made my way back to the parking lot. I didn’t care. I got lost and almost yelled at a nurse to help me find my way back. I broke down in front of her in the elevator, and she was good enough to smile and nod at me until we got to my floor. She pointed me in the direction to the parking garage, and had the elevator doors closed before I could turn around and thank her. I cried all the way to my car. I climbed in and told myself I had to calm down, that I’d buy myself cigarettes and coffee if I could only just calm the hell down.

On the ride back to my aunt’s house (I was house sitting at the time), I snapped. Fuck it all, I thought. I would just go home and wash down whatever Tramadol I had left with a nice cold glass of water. The solution didn’t calm me like I thought it would. I cried all the way back to the house, the tears blurring my vision. I kept thinking I needed to stop crying before I got into an accident, which is ironic considering what I planned to do.

I got home and got ready. I cried the entire time I changed out of my work clothes. I cried as I filled a glass of iced water. I cried as I went back upstairs for the little bottle of pills and my journal, thinking that I would write my note in there. As I wrote, I realized my words weren’t final but frustrated, angry. I realized that the dishes needed to be done, that my aunt’s cleaning lady would be there soon, that I didn’t have enough pills for anything to happen except maybe a really super high that would probably make me sick.

The urge went away. I felt stupid and overdramatic. I called Mike and chainsmoked as I told him what had almost happened. I took it lightly. I talked to my mom, his mom, my aunt, and my journal some more. I felt better, but I didn’t feel optimistic. After talking to my mom some more, I decided to schedule an appointment with the hand specialist — Dr. Manzo — again.

I’d come full circle.

( To Be Continued… )


Read Kill the Pain (Part I), Kill the Pain (Part II: Doctor Soup), and Kill the Pain (Part III: More Doctor Soup).

Kill the Pain (Part III: More Doctor Soup)

May 28th, 2009 by Elizabeth Kaylene

Doctor Soup is my name for the pot of doctors I’ve seen for whatever is wrong with me. I have bounced back and forth and all around to several different doctors, all of which had their own opinions and solutions, but in the end had no idea what is actually going on. On my most recent visit to a doctor — it was, in fact, to see Dr. Manzo again — I told Dr. M that I had a stockpile of different prescriptions and meds, and that I didn’t know what to take because I had no idea how things would interact. Dr. M said that there were “too many doctors in the pot,” and hence Doctor Soup.

Dr. Lichter did another EMG. The results were the same. He sent me for more bloodwork, and my blood was still healthy. We discussed my frequent use of the computer, for pleasure and for work, and he suggested I try physical therapy. He sent me to Rehab Health, a local physical rehab clinic. He told me I should go once or twice to learn some ergonomic workstation techniques — things I could do for my workspace to make myself more comfortable and that would possibly relieve the pain. In the meantime, he gave me a prescription for Neurontin — a neural pain medication. I only took the medication for about a week or two. While on it, I couldn’t drive or walk. I had to be babysat, as it made me edgy, paranoid, confused. At one point, I didn’t know where I was or who I was with, even though I was safe with Mike. My memories of those Neurontin induced days are hazy, and it scared me. I stopped taking it without bothering to wean myself off of it.

I went to physical therapy a few times, and the physical therapist — I think his name may have been Steve — showed me the same stretches every time. He didn’t show me any workstation techniques. I had to remind him several times and all he did was print a bunch of stuff off the the internet after Googling it. I was pissed; I could have done all of that myself for free. My Google skills are pretty sharp. I was also pissed because Steve tried to get me to come several times a week. He tried to tell me that Dr. L wanted me to go several times a week. At $30-40 a visit, there was no way I could afford it. There was also no way I could fit two hours of physical rehab that wasn’t helping into my work and school schedule. I wanted to get better, believe me, but I couldn’t help but feel that I was being taken advantage of. I told Steve that I would not be coming back, and made another appointment with Dr. L.

During that last appointment, Dr. L told me that maybe I just needed exercise. Maybe I should get a gym membership, he said, and that I could try swimming. He did not refer me to anyone else.

For a while I kind of stumbled around. I slipped and fell on some ice that winter and landed on my left arm. I hurt my back pretty badly. For the next few months, my back and neck hurt on and off, as well as the gradually sharper pains in both of my arms. I felt pretty hopeless. My mom started talking to her coworkers (working in a hospital has its benefits), and learned that one of her coworkers — Dawn — has thoracic outlet syndrome (TOS). Dawn said that seeing a chiropractor had really helped her get relief from her symptoms; like me, regular medicines like Tylenol, Aleve, Motrin, and Advil did nothing to help the pain. She said that her symptoms had temporarily gotten better, but that after not seeing the chiropractor for a few months they were starting to come back.

I started researching TOS. The symptoms sounded a lot like what I was experiencing, but I wanted to hear it from a professional. I knew that the worst thing I could do would be to self-diagnose and start going overboard with research. I looked up a local chiropractor, Dr. Rosa, who I’d heard a lot of good things about.

My mom came with me for the first visit, like she usually did. I had a hard time going to any doctor alone, and still do. I need that support, that calm and sure presence of someone I love and trust. Dr. R looked me over. He did a full physical exam and noted a few things about my build: my small frame, the lack of curve in my neck bone, my uneven shoulder blades. He said that he thought I could have some kind of thoracic outlet syndrome. My mom and I looked at each other, giddy. I should have asked if he was positive about this. I should have asked for tests confirming it. I was so excited to have a diagnosis, even one that wasn’t 100% certain, that I didn’t. I kept my mouth shut.

Dr. R started treatment right away. He had his assistants (I still don’t know the technical names for them) do two kinds of massages on my neck and back, and then he came back in to crack all of my neck and back bones. It was weird, but my back and neck felt much better right away. I started practicing better sleeping posture. I felt hopeful for the first time in a long time.

After several weeks of continuous chiropractic therapy, my back and neck pain had disappeared. The pain in my arms, however, had not.

“Am I supposed to be feeling better?” I asked Dr. Rosa one day after a session.

“Yes. Don’t you?”

“Well, my back and neck feel great, but I’m still getting the pain in my arms.”

He looked at me, and I felt my heart drop. “Well,” he said. “If you’re not feeling any better, there’s no reason for you to keep coming here and spending more money.”

I bit my lower lip. “But it’s definitely TOS, right?” All of the blog posts, journal entries, and conversations mentioning “my TOS” flashed through my mind.

He looked at me again. “If you’re not getting any relief, then I’d say no. Most patients experience some relief with the techniques we’ve been using. Also,” he said, “since you’re having bilateral symptoms, it pretty much rules TOS out.” He sighed. “I don’t even know where to send you, since you’ve already been through the mill.” He went on to suggest an acupuncturist, but my mind was on another plane.

If it wasn’t TOS, what could it be?

( To Be Continued… )


Read Kill the Pain (Part I) and Kill the Pain (Part II: Doctor Soup).

anything but nothing

May 28th, 2009 by Mindy

Sometimes it sucks being sober when all I want is to feel something or nothing.  But that is me, sober, as I will stay.  If I don’t I will lose everything and I am no fool to not know that. But still sometimes it remains.

today was such a hard day.
i wanted to do everything and nothing all at once.
i just wanted revenge, to be mad, sad…
i wanted a cigarette, a drink, to shop, to eat
nothing though….i did nothing
i couldn’t bring myself to do it, but if it had presented itself
then maybe I would have

i’m so sick of putting on a happy face
i don’t even know how to “feel” myself anymore
i don’t even know what’s real and I don’t know why
where did it all go? somehow I’ve put on a mask
to fool others and instead I have somehow fooled myself

i’ve tricked myself into thinking that i was ok
but deep down, i’m not healed…i’ve band aided a wound
way too long…and each time i hear a tune
one that can pierce me again, and make me feel alive
or pain…or something…anything…
but nothing

Reflection Pool

Kill the Pain (Part II: Doctor Soup)

May 27th, 2009 by Elizabeth Kaylene

Dr. F was concerned that I might have a heart problem that no one had ever picked up on (he specializes in pediatric cardiology). He sent me for an echocardiogram, which is an ultrasound for the heart. He also sent me for bloodwork, which I had done that same day I believe. I had the echocardiogram done soon after that first doctor’s visit. I remember my Noni (Italian for “grandma”) taking me, and I remember being scared enough to not care that I had to get naked in front of her. The technician who did the echocardiogram couldn’t discuss the results with me, so I visited Dr. F again about a week later. All of this had happened over the span of about two weeks. By the time I saw Dr. F again, my arm was back to normal. Since the test results were fine and my arm was fine, Dr. F said that it had probably been a pinched nerve and that I should call him if anything else happened.

For about two months, everything was fine. I forgot about the whole thing. Occasionally I thought about the weird pinched nerve I once had, but for the most part I concentrated on my new relationship with Mike. We were dating again and I was busy finishing up the spring 2007 semester and getting ready for a summer without homework and papers. I want to stress the fact that I wasn’t stressed out at all, because some of the doctors I’ve seen have blamed this whole thing on stress. I’m getting ahead of myself here, but it’s important to me that I stress the fact that I was happier than I’d been in a long time.

And then it happened again.

This time, my arm was a little numb but I got little “tingles” of pain now and then. They weren’t anything too painful, but the aches were there and I was worried again. I made another appointment with Dr. F and again he noticed that the pulse in each arm was different. He was truly concerned and sent me for more bloodwork. That came back fine, too, so he sent me to see an orthopaedic specialist, Dr. Manzo the hand surgeon. Dr. F thought that maybe it was carpal tunnel or something similar, and trusted that Dr. M would be able to figure it out.

Dr. M had me go for more bloodwork. He sent me to Dr. Lichter, a physical rehab specialist, for an electromyogram (EMG; nerve conduction test). He did several of his own tests, to test the strength of my arm and the ligaments, as I’d noticed that I couldn’t open bottles of water or jars of peanut butter as easily anymore. Everything came back fine. He did note that the strength in both of my arms was different, and had me try a brace for a while to see if that would help straighten out my arm if I had any kind of carpal tunnel syndrome. All of the tests, however, ruled CTS out. I stopped wearing the brace because I would wake up with the base of my thumb swollen, and it wasn’t helping anyway.

Around that time, the pain began to intensify and to manifest in my right arm as well. For obvious reasons, it scared me. Dr. M couldn’t figure it out. My mom and I had looked into the possibility of fibromyalgia, and although Dr. M seemed genuinely concerned about my condition he did not seem to think of fibromyalgia as a valid medical problem. He sent me to Dr. Lichter permanently, because Dr. L specialized in diagnosing fibromyalgia. Dr. M did say, however, that he didn’t think it was anything like that because I am so young. He told me I could always come back if I needed to, and so the Doctor Soup began.

( To Be Continued… )


Read Kill the Pain (Part I).

Kill the Pain (Part I)

May 26th, 2009 by Elizabeth Kaylene

It is alarming that my left thumb and hand were sore and swollen for over a week last week, but since it was no longer swollen when I saw my hand doctor, I wasn’t taken seriously. It is alarming that when I went to see my neurologist while my hand was still swollen, he didn’t seem to remember me or my condition — whatever that condition may be.

Every day feels like Russian roulette. One day I can be in extreme pain, the next I can be just fine. Today my legs are achy, and standing or bending down is very painful. I know that something is WRONG, something is very wrong, but no one takes me seriously. Not a single doctor has said to me, “I don’t know what’s wrong, but I’m going to do everything in my power to find out.” Each doctor that I have seen says things like, “I don’t know,” or “maybe you hurt yourself,” or “you should see a therapist,” or “your blood tests came back fine.” I am so tired of being bounced around, so tired of hearing those words. I’m tired of seeing specialist after specialist who shrugs their shoulders and passes me on to the next person in the game. I feel like the hot potato; many times I’ve been “dropped” by a specialist who couldn’t be bothered. The rehab specialist I saw told me to “get a gym membership” and to “go swimming.” He also told my hand doctor that I was “feeling much better.” Now when the hell have I ever felt “better”? I cannot recall a time since this all started that I felt “better.”

Restraining myself from sending this “doctor” a letter telling him exactly how much “better” I feel is getting more and more difficult every time I think about it.

It scares me that this all started with out of the blue numbness. When this all started, I worked at Toys R Us as a sales associate. I spent most of my time in Rzone (the video games and electronics section), a little time as a cashier up front, and almost no time on the sales floor. That particular day I was on the sales floor. (I didn’t do any heavy lifting or anything extreme. I just punched stuff into a computer and helped people find gifts for their kids.) This is probably the only good thing about that day, since at least there were no customers around when it happened and I was able to run to the break room pretty quickly.

I didn’t do anything out of the ordinary that day, or any other day before that. Sure, I moved some kind of outdoor pool set or something. Sure, the box was a little bulky, but I swear that it did not have anything to do with my problems now. (I stress this because every time I mention it to a doctor or, more recently, my therapist, they insist that I must have injured myself. I just want everyone to know that there is no way possible that my legs could be affected by supposedly pulling a muscle or nerve in my arm.)

I managed to get the stupid box back in its rightful place (it belonged on the other side of the store, with the seasonal stuff and not the boys/girls sections), and continued about my day. About twenty to forty-five minutes later, my left arm went numb from the elbow down. No tingling, just nothing. It felt like I’d been laying on it for a while, even though it had just been swinging along my side as I mindlessly walked around and around the store, putting things in their proper places and talking to the few guests (customers) we had that day.

I could move my fingers and stuff, but I just couldn’t feel as much as I should have. I could pinch and scratch and poke myself, but it didn’t feel as intense as it should have. I even had my boss at the time poke at my arm. I called my mom and then my pediatrician, who I still saw at the time. It was March 2007 and I was 18, almost 19. I had yet to get myself in with a grown up doctor. Maybe that would have changed things. Who knows.

I was able to go in and see him, Dr. Fischbein, right away. He’d been my doctor since birth, and even though his office had expanded quite a bit and I rarely saw him anymore, that day I got lucky. I insisted on seeing him specifically, and coincidentally he was in that day. I don’t know what would have happened if he hadn’t been. I think any other doctor would have instantly written it off as a pinched nerve.

The receptionist I spoke to was concerned that I may have had a stroke. I called my mom back and she and Dad rushed to come pick me up. Meanwhile, Mike took his lunch break so he could sit outside and chain smoke with me while I waited. His calm personality kept me in check. I don’t know what I would have done if he hadn’t been at work that day. At the time, we were broken up. It still means so much to me that he waited with me.

My parents arrived and I went with them to my doctor’s office, terrified. I had no time to think about Mike and our status. I got to the office, wrote a check for my co-pay (or maybe Mom did; I can’t remember), and got in to see him very quickly. He took my pulse and blood pressure in that arm, and then did the same for my left arm. He noticed right away that the pulse in both arms differed. He stepped into the hall and I heard him say something about a “cardiovascular anomaly” to someone. A female doctor came in and checked my pulses to confirm what Dr. F had found. The pulses were definitely different. Now we just had to figure out what that meant.

( To Be Continued… )

Wristcutters: A Review

May 23rd, 2009 by Elizabeth Kaylene

Can you imagine a world without smiles or stars?

Thursday night I decided to watch Wristcutters: A Love Story. When the movie started, Zia (Patrick Fugit’s character) woke up, changed his clothes, and started cleaning up his messy apartment. I was instantly reminded of Dante (the character I write for when roleplaying with my friend Mary). Almost five minutes later, it happened: Zia killed himself. I clapped my hand to my mouth, not sure I could watch anymore. Naively, I had expected a fade to black overdose. I didn’t expect the slap in the face that I got instead.

“It’s about a way station in the afterlife for people who committed suicide,” I said to Mike, who called halfway through the movie. “And it’s worse than life before. But it’s funny. Really. Like, the main character, he works at this place called Kamikaze Pizza. And his roommate, he yelled at him for not peeing sitting down.”

No response from Mike.

“No, really, it’s funny. It’s cynical,” I told him. He didn’t believe me. “It’s serious, but it’s really got a Vonnegut Cat’s Cradle — I need to read that book again — feel to it.”

“Whoever that is,” he said. It’s hard to impress someone with a movie about suicide when you’ve got a track record for suicidal behavior.

The movie is actually based on a book, Kneller’s Happy Campers, by Etgar Keret. At the time I was bored, it was On Demand and, more importantly, it was free. It also wasn’t a movie I’d seen a hundred times already. Still, I didn’t have high expectations. I like Shannyn Sossamon (Mikel), but I thought the movie might be a little cheesy and very watered down. I’d ordered it anyway. I owed it to myself to watch something cheesy. House sitting has its perks; no one could judge me if the movie was bad.

I knew what the movie was about before I ordered it. I was prepared, but I had still expected the director and writer to water it down. I didn’t expect them to be so blunt and honest about Zia’s suicide. It hit me hard because, once upon a time, I had sat in a dark bedroom lit only by Christmas tree lights with my culinary school knife set spread out in front of me. I had taken a deep breath, reached for a knife, and froze. Two seconds later I began rereading the letter that saved my life.

The movie continued. I recovered. I watched, still shocked but intrigued. If they weren’t going to make the main character’s suicide look like hearts and flowers, then surely the rest of the movie couldn’t be that bad.

It wasn’t.

I appreciated the witty, straightforward approach to depression and suicide. I loved the colorful, diverse characters (ranging from Russian slackers to zany camp directors). I smirked and giggled and cried. The ending didn’t leave me depressed, as I’d feared. It left me with a better appreciation for life, and now I have a new author to check out.

When the movie ended, I wore a smile.

Did you see “Wristcutters”? What did you think? If you didn’t see it, will you? Leave a comment and let me know!